Famy Västerbotten is an association based in Skellefteå that focuses on hereditary transthyretin amyloidosis, commonly referred to as Skelleftesjukan, as well as cardiac amyloidosis. The organization is dedicated to supporting research initiatives aimed at understanding and treating these conditions. By providing information and resources, Famy Västerbotten assists individuals and families affected by these diseases, helping them navigate their experiences and access necessary support.
In addition to its research support, Famy Västerbotten encourages community involvement and awareness regarding amyloidosis. The organization actively promotes fundraising opportunities to bolster research efforts and improve the quality of life for those impacted by these conditions. It also facilitates collaboration between patients, families, medical professionals, and researchers, fostering a network that allows for the sharing of experiences and advocacy for patients' rights and access to treatment. Through these initiatives, Famy Västerbotten aims to create a supportive environment for individuals affected by hereditary transthyretin amyloidosis and cardiac amyloidosis.